Saturday, December 24, 2016

Education and Compassion: Week Three

Of the many ways to learn about compassionate care in medicine, a great option is taking classes through the Hillebrand Center for Compassionate Care in Medicine. A unique course is Film and the Physician- Portrayals of Medicine in Film and the Arts (SCPP 30320). Dr. Gary Fromm, the creator and professor, states that while it isn’t uncommon to have discussions which explore portrayals of medicine in the media, it is rare for universities to offer semester long courses on the topic.

Film and the Physician explores the portrayal of topics such as gender, culture, ethics, patient interaction, end of life, and bad news in media. Dr. Fromm points out that every film which involves medicine inherently touches on humanism and compassion, and that each doctor-patient interaction shown in media can portray compassion— or perhaps the lack thereof.

The media has the power to shape the public’s perceptions of healthcare, and more specifically, their healthcare providers. Medical shows have been popular for quite some time, and Dr. Fromm highlighted that since their advent, they have been altering the public’s perception. He revealed that up until the 1970’s doctors in media were generally portrayed positively, however, they were also extremely homogenous— the majority of doctors being shown were white and male. Through the 70’s and 80’s the representation of doctors shifted dramatically to a more greedy and self interested perception.

Dr. Fromm values the candidness of the discussion that is often found in his classroom. He hopes that at the end of the semester that students will be able to leave more open-minded and with the ability to dissect the issues portrayed in media involving healthcare. Additionally, he urges students to not look to the media to shape how they practice compassion in medicine, and to watch with a critical eye.

Film and the Physician is offered each fall semester and is a great way to look at compassion in medicine. As a final note, Dr. Fromm emphasizes that compassion and ethics are just as, if not more, important as the sciences in medicine. Examining film’s portrayal of medicine is an excellent (and engaging) way to look at issues of ethics and compassion. It is important to acknowledge that physicians have not always done the best job with these matters, but it is our responsibility as future healthcare providers to engage these topics.



Dr. Fromm hails from South Bend, and attended Indiana University and IU Medical School after graduating from South Bend Adams high school. He currently practices pulmonary medicine at Memorial Hospital.


This post was written after a personal interview with Dr. Gary Fromm. 

Sunday, December 18, 2016

Education and Compassion: Week Two


                  I remember when I was a kid on the Southside of Chicago in the ‘60s visiting our family doctor.  He had his own office, a solo practice, complete with his own nurses and the ever-present smell of alcohol keeping it clean.  His waiting room looked like a large living room.  He did everything for our family, taking care of three generations of us:  delivering my mother and me, doing surgery, giving us vaccines, and coming out to our home when we were really “sick” with things like the flu.  He was very much a part of our family.  He also was one of my idols growing up - I wanted to be a doctor just like him.
                  Those days are long gone and family docs like that are rare, even in rural parts of America.  Doctors back then did learn the science of medicine but spent a bulk of their time mentoring one-on-one with another doctor in his/her practice, learning how to communicate with people, developing relationship skills, and being involved in their local community. 
Nowadays, medical students will learn communication skills by reading a book or in simulated labs with actors playing the role of patients with various illnesses. =When medical students do get to talk to real patients, it is mostly in a sterile hospital environment during an illness crisis.  Consequently, it is very hard for those “docs in training” to gain much-needed experience in developing patient relationships when the primary emotion in the room is fear – their own and the patients’.  The patients are afraid of what might be wrong with them, as they sit in a half-naked state with a gown that flaps open in the back.  The students are afraid of doing something wrong or not asking all of the dozens of closed-ended questions that they are told to ask.  Listening skills go to the wayside in an environment like this.
Yet studies show that 80% of diagnoses are based on the communication skills involved in getting the right story, even with all the modern diagnostic equipment and specialists that we have at our disposal.  Extracting the right story from the patient is the art of medicine that is being lost in our increasingly technological world.
                  What has led us down this path?  I think two main causal factors have (along with many secondary contributors):  the massive growth of information and the industrialization of medicine. 
                  The amount of information crammed into 4 years of medical school is daunting these days.  I had been involved in trying to improve medical education at a major university for a number of years, mainly by trying to improve the amount of one-on-one mentoring young medical students would receive.  This type of medical education is akin to the more humanity-focused training given to the family practitioners of yore.  But there is much resistance in doing so.  Other priorities and the values placed on other types of information-laden experiences get in the way. It seems there just is not any room left in their curriculum for “higher touch” experiences like this. 
Perhaps even more concerning, however, is the industrialization of medicine – exemplified by the focus on health business models which have more control over decisions of care than the doctors themselves do.  This factor threatens the very fabric of our profession, both for medical students and those of us actively practicing.   As a medical professional committed to serving patients, the industrialization of medicine quickly gets personal.  You are frequently told by health insurers that you cannot prescribe this medication nor get that test.  System administrators will only let you have 10-15 minutes per patient and get upset when you run late.   Additionally, it can feel like a bevy of lawyers are on the look-out for any way to file suit and bring you to court…even for conditions that are an expression of the forces of nature (like birth defects) as opposed to actual human error.  
As a consequence, much more time is taken away from direct patient relationships in order for doctors to defensively chart, fill out forms, and squeeze more people into a packed day.  Time and money are the value now, not the relationship with the patient. 
                  Nowhere does this lost art of communication show up more than when patients get seriously ill, especially when they may be in their last year of life.  A number of studies have evaluated what is important to Americans when they are dying along with the reality of how they die.  Some very concerning gaps exist.  Patients are focused on their fears, on their future, on quality of their and their family’s life.  Yet most doctors focus on using more and more intensive treatments to fix things, even in hopeless situations.  If doctors spent more time pulling up a chair and talking about values and wishes, however, these gaps would disappear. 
We as physicians need to step up, learn how and when to put the science on the side, and instead to focus on the human side of what it is to be a patient - no matter what the cost. We must get to know the person and family in front of us and to help figure out how best to travel the tough roads with them.  
It can be done. Yes, it takes time, it takes courage, but the results will always outshine all the technology we can deliver.  
                  Almost all college students exploring the path to become a physician start out like I did – with a very altruistic focus on helping people, being their confidante, and serving as their lifelong family doctor.  Sadly, somewhere along the journey for most practitioners, this gets lost.  I encourage all young people thinking of this career to spend as much time learning about the humanities – the arts, theatre, social sciences, religion, volunteer activities – anything that will help you focus on relating to others.  And keep this passion close to your heart throughout your future career. 

It will not only make you a better physician, but it will also help you to avoid burn out in an increasingly tough business.

Dr. Michael Marschke graduated from the University of Notre Dame with the class of 1982. He currently works as the Director of Hospice and Palliative Medicine with Northshore University HealthSystems.  Dr. Marschke can be reached at mmarschke@ameritech.net. 

Sunday, December 4, 2016

Education and Compassion: Week One

             In order to better understand the role of relationships between breast cancer patients and their families and friends on their hope for overcoming the disease in Uganda, I traveled to The Uganda Cancer Institute this past summer to initiate a research investigation on this topic. With uncertainty on where the project would go or what the experience would be, I cautiously stepped into the crowded solid tumor ward on my first day with an open mind and heart. As I followed the physician as he
made his rounds, I was struck by one particular patient. This patient was elderly, gaunt and had a look of panic painted on her face. As our eyes met, she shed a single tear. My heart drew me to her immediately and I simply stood by her side as she waited for the physician to reach her on his rounds. Uncertain on how to comfort her, I simply waited for her to express herself. She began to tell me how she had been denied chemotherapy due to being too thin and thus physically unfit for the intense treatment. She then went on to explain that she had no family, friends or home where she could access the nutrition she needed to nourish herself. Without the means to address her longer term needs, I provided her with the only thing I could at moment in time-compassion and love. I allowed her to speak of her concerns and simply listened with a concerned heart. The doctor then came to address her needs and I unfortunately had to leave her side.
            This situation unfortunately echoes the situations of far too many cancer patients in the developing world. While a majority of women in the developed world understand potential risks for, signs of and treatments for breast cancer, many women in developing nations such as Uganda are often deprived of this information. Due to the extensive lack of awareness of breast cancer, many women do not receive timely diagnoses and end up suffering from the disease, such as the woman described. In addition, the lack of understanding surrounding the disease has led to stigmatization of the disease. Women who are diagnosed with breast cancer often find their families and friends distancing themselves from them or completely abandoning them due to a fear of the disease and its potential risk for death. In order to enhance the combat against breast cancer and others cancers as well in Uganda and in other developing nations, the role of compassion must be remembered by all. Unlike the woman who I met on the first day who had no relationships full of compassion to aid her in her journey, there are patients in Uganda who are accompanied by compassionate and loving individuals on their journeys with cancer. The patients who are fortunate to experience these relationships report much different feelings than the woman I met on my first day. Those who are accompanied by compassionate and loving individuals often describe feelings of hope for the future and stronger feelings of dignity.

            In response to this research endeavor, I am calling for compassion to be remembered during the most difficult times as we continue to confront the global burden of cancer. For it is these times, that is is often most essential. Cancer patients, whether in Uganda or in the US, require loving individuals to accompany them on their journeys for it is often an emotionally and physically grueling journey.

Sarah Fracci is a part of the Class of 2017 and is majoring in Biological Sciences and minoring in Poverty Studies and International Development Studies. She is interested in global health, the global burden of cancer, breast cancer research and pediatric oncology research. In her free time she enjoys crafting, decorating, baking, reading, and running. Next year she is taking a gap year and is then plans to obtain an MD/MPH. She hopes to use her gap year to continue her research endeavors with the Uganda Cancer Institute.